Meet Princess H.

This is Princess H. She is 5 years old. She has a heart that is a hundred times bigger than she is. She is loving and kind. She is friendly and the hardest worker I know. She was born without incident; but soon after her birth I knew something was not right. We went a year being told by her doctor that she was fine. At her year check-up, we switched doctors. The new doctor immediately ordered a MRI. A few days later he called with the news that things were indeed not right. After meeting with a neurologist, we were told she had colpocephaly. The prognosis was unknown. This is rare and at the present time there are not even specialists in this particular diagnosis. We went through one year of genetic testing. We would be testing for some really awful things. The conditions we were testing for were ones that would cause her to develop to a point then begin to lose those skills until she would die. There were times that the question of whether or not she would live to be 3 was a great uncertainty. All the tests came out normal and we eventually just quit. Our neurologist had said it was a miracle that any of us turn out "normal" and we believe that is true. He had told us at our first appointment that he believed her condition was just a fluke. Princess H goes to therapies and is one of the hardest workers with the most cheerful disposition you could imagine. She has obstacles that most people cannot imagine. She does not let them hold her back. She is a such miracle (all of them are). Having her has shown me some amazing things. I have experienced "the hope that surpasses all understanding" (Philippians 4:7). There were moments while we waited for test results when I would feel like I was literally drowning. In those moments, I would call out to Him and I would feel a peace come over me and completely calm me. I knew that regardless of what happened He would hold me. I am so thankful for this. I am so thankful for Princess H. I am so thankful that God let her stay with us. I am so thankful for all of my children and what having her in our lives has taught all of us. She is doing so well now. I hope that she inspires others. She certainly inspires me.